Lista di Discussione
sulla malattia di Alzheimer

wubios.wustl.edu

ospitata e gestita da
Alzheimer's Disease Research Center
Washington University Sch Med

Campus Box 8111-ADRC
660 South Euclid Avenue
St. Louis, MO 63110
FAX: 314/362-4763
VOICE: 314/362-2881

Questa e' una lista non-moderata, aperta a chi e' interessato alla Malattia di Alzheimer.
Comprende familiari, operatori, assistenti socio-sanitari che studenti, medici, ricercatori, professori, giuristi. Vi e' un elevato traffico di mail (20 / 40 al giorno), varie e la maggior parte delle quali piuttosto interessanti.
Vengono poste questioni (sia "tecnico-sanitarie, che etiche, che suggerimenti pratici) che in genere trovano risposta o stimolano un suggerimento. E' anche un luogo per scambiare informazioni, creare contatti e scoprire quali attivita', centri, associazioni vi sono nella propria zona. La lista e' in ligua inglese, ed chi scrive in genere vive negli Stati Uniti (per cui i riferimenti legislativi, su centri, ospedali e associazioni ... riguardano gli USA). Speriamo di riuscire ad attivare una analoga lista in Italiano altrettanto utile e frequentata.
Una iscrizione, anche per un breve periodo, a questa lista puo' essere utile per avere una idea di come una lista di discussione su Alzheimer puo' essere di utilita'.

Come iscriversi

Per iscriversi e' sufficiente inviare un messaggio di posta elettronica a:

Majordomo@wubios.wustl.edu

con il seguente comando nel testo del messaggio:

subscribe alzheimer {indirizzo elettronico}

dove ad {indirizzo elettronco} deve corrispondere l'indirizzo dello scrivente ( quello con la chiocciolina @ ).

Questo e' il "charter" (il messaggio iniziale) che viene inviato a chi si iscrive alla lista: 

**********************************************************************

Welcome to the alzheimer mailing list!

If you ever want to remove yourself from this mailing list, you can 
send mail to "Majordomo@wubios.wustl.edu" with the following command 
in the body of your email message:

unsubscribe alzheimer {your email address}

Here's the general information for the list you've subscribed to,
 in case you don't already have it: 

Welcome to ALZHEIMER!

(Please note that there is a BRIEF (2 minute) survey at the end of
this note. Help make the list work for you by completing the 
questions and returning it.) 

This list is open to anyone interested in Alzheimer's disease 
and related dementing disorders. Subscription is open to everyone 
-- professionals, laypersons, students, caregivers. 
Please feel free to use this list to announce conferences, ask 
questions, share inspirations and tips, discuss research findings, 
or any other topic of common interest to this list. 

This is an un-moderated list, thus it relies on the good judgement 
of all subscribers to send only appropriate material. 
NO COMMERCIAL ADVERTISING should be sent to the list. 
Please do not use the list to obtain medical diagnoses or appropriate 
treatment; you should seek direct medical examination for an accurate 
diagnosis. As the list is not moderated, no guarantee can be made as 
to the accuracy of information exchanged. Opinions expressed are not 
necessarily those of the ADRC or NIA.
**********************************************************************
To send a message to be broadcast to all ALZHEIMER subscribers, 
email your message to:

alzheimer@wubios.wustl.edu
*****
Discussion of interest to only two parties on the list should be 
taken "off-list" by using private email addresses (but keep in 
mind that many of your discussions WILL be of interest to the 
larger group). To see a list of all subscribers and their addresses, 
send an email message to:

majordomo@wubios.wustl.edu

with the following one line command/message in the body: 

who ALZHEIMER
**********************************************************************
To get a list of the files in the archive for ALZHEIMER, 
send a message to: 

ALZHEIMER-request@wubios.wustl.edu

with the only line of the message being: 

index

Then, to get a copy of one of the files, send a message to the same 
address, but this time request/send single line of message: 

get 

where  is the file you want 
(e.g. alzheimer.9409 for Sept94 archive).

ALZHEIMER is archived monthly, so archive file names are 
always alzheimer.two-digit-year-two-digit-month 
(e.g. alzheimer.9408 for Aug94) 
**********************************************************************
To get a help message explaining these and other commands, send to:

majordomo@wubios.wustl.edu

the following one line command/message in the body: 

help
**********************************************************************
To delete your subscription, FROM YOUR SUBSCRIBED ACCOUNT 
send a message to: 

majordomo@wubios.wustl.edu

with the following one line command/message in the body: 

unsubscribe ALZHEIMER
**********************************************************************
For LISTS OF PRINTED AND AUDIO-VISUAL MATERIALS available on the 
topic of Alzheimer's disease, or for support services available in 
your community, contact one or both of the following organizations: 

Alzheimer's Association (Chicago, IL) 
1-800-272-3900 VOICE 
312/335-1110 FAX
greenfld@class.org

Alzheimer's Disease Education and Referral Center 
(ADEAR, NIA; Silver Springs, 
MD)	1-800-438-4380 VOICE
301/495-3334 FAX
**********************************************************************
For further information about this list, contact: 

ALZHEIMER-owner@wubios.wustl.edu

Alzheimer's Disease Research Center
Washington University Sch Med
Campus Box 8111-ADRC
660 South Euclid Avenue
St. Louis, MO 63110
FAX: 314/362-4763
VOICE: 314/362-2881
**********************************************************************
Vi e' poi allegato un questionario da compilare per chi si 
iscrive alla lista
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